Navigating Medical Motherhood: Parenting a Child with a Rare Genetic Condition with Abbigale Stewart

If you are in a hard season of motherhood, feeling overwhelmed by a tough medical diagnosis, or struggling to catch your breath—this episode will speak right to your heart.  

Mama to four little ones, Abbigale Stewart joins us to share her story of navigating life with her sweet two-year-old son, John-Baylor. From open-heart surgery at just two weeks old to a rare genetic diagnosis (PMM2-CDG), Abbigale knows the terrifying feeling of being on an isolated island. But she also knows what it feels like to reach the other side of that fear.  

In this episode, Abbigale gives moms permission to feel the hard emotions, trust their maternal instincts, and give themselves grace. She shares how leaning into faith, leaning on family, and taking things "one day, one appointment, and one milestone at a time" helped her trade dark, uncertain moments for days filled with joy, progress, and hope.  Abbigale also breaks down the game-changing power of intensive therapy—how pushing through three weeks of hard work helped John-Baylor sit up independently, bear weight, and build momentum toward walking.  

Tune in for an honest, encouraging conversation that will remind you that you are never alone and that brighter days are truly ahead.  

Episode Links & Resources:
Curious about the intensive therapy program Abbigale mentioned in this episode? Listen to our full episode with her intensive therapy team, Meredith and Chloe, here: https://youtu.be/5bTyBY7YRWg